The Alfred Research Alliance is home to the largest concentration of clinical registries in Australia.
At present over 20 major clinical registries are located on site at the Alfred precinct, mainly within the Centre of Research Excellence in Patient Safety (CREPS). CREPS was established as an NHMRC Centre within Monash Public Health and Preventive Medicine (SPHPM) to provide national leadership and research into the measurement of quality of care.
Registries provide measurement and benchmarking of the outcomes of high significance clinical procedures. They are also used to monitor the safety of new drugs, devices and surgical procedures.
Clinical registries collect an identical minimum data set from patients treated at participating hospitals. Outcomes of treatment are also measured in a systematic way using identical definitions. The data are fed back to clinical teams to allow their performance to be measured against other units, nationally and internationally. Some registries also collect details of treatment allowing the measurement of compliance with treatment guidelines and exploring variations in care that are still prevalent, even for common conditions such as prostate cancer.